Managing chronic illness at college: 5 things you can do to get ready
Managing chronic illness at college: how to prepare yourself
Starting post-secondary school with a complex health condition: 5 tips for students, plus 5 ways institutions can help
The transition to university or college is an exciting time for many young adults, but it can also be demanding and stressful. Young adults living with complex health conditions and chronic illnesses may face unique challenges with this transition.
As health care providers with experience in chronic disease management, we explain what underlies some of these challenges in managing chronic illness at college and provide strategies to manage them.
Understanding the challenge of having a chronic illness at college
Many young adults transition to college or other post-secondary environments at or around the same time they are transitioning from pediatric to adult health care. This transition itself can be difficult as adult care is often less centralized, involves different health care providers, and expects a higher level of independence.
Yet, at the same time, young adults are only beginning to refine their self-government, autonomy, and life skills, such as decision-making, goal-setting, and crisis management.
General recommendations for people with chronic illnesses include having self-management strategies like stable routines, a strong social support network, and an established circle of care. However, many aspects of the post-secondary experience are not conducive to these healthy behaviors.
Starting university or college may involve moving cities or provinces away from family, friends, and other social supports. Inconsistent class schedules and evening events may challenge consistent sleeping and healthy eating routines.
Classes are often longer and require sustained attention, which may be especially difficult for those with fatigue or difficulties concentrating. Evaluation and grading systems based on a few high-stakes exams or papers may be challenging for those with fluctuating abilities.
The transition to college with a chronic illness may also be accompanied by changing role expectations. These could include commuting, navigating relationships with roommates, meal preparation, paid work, and managing chronic illness and friends.
Managing a chronic illness or health condition can make all those college transitions more complex. Here are five tips for students starting college and similar post-secondary education with complex medical needs and/or chronic illnesses.
5 things you can do to prepare for managing chronic illness at college
1. Connect with relevant Student Support Services
Connect with relevant services at your school. This includes introducing yourself to health resources in your new space, such as campus mental health services or campus health care to ensure you have a doctor nearby. Have a clear understanding of your health insurance coverage (for example, for things like counseling or physical therapy).
Also, check out accessibility resources like student accommodations services or policies, student groups, and disability services.
Collectively, these services help you navigate accommodations for classes or exams, inform you of your rights, and offer supportive assistive technology, including multimedia support for text material and speech-to-text apps.
2. When managing chronic illness at college, you need to be your own self-advocate
Self-advocate and identity what is working. You may be able to have a reduced course load, get extra time for exams, have a hybrid schedule, get extra help, or access note-taking services. You may also be able to use assistive technology during class or exams. Once you identify what’s working for you or what has worked in the past (such as social support or the strategies mentioned above), plan and advocate to keep them.
3. Adjust your schedule (where you can ) to match your needs
Organize schedules to your advantage. This may include scheduling classes only in the afternoons or evenings, planning out a physically accessible route, and finding rest or quiet study spots. Accessibility services may help you accomplish this.
4. Get your medical paperwork and records in order
Have your paperwork. All your paperwork. Especially if moving to a different city. You may need new health care providers, and there is no guarantee these providers are familiar with your medical and personal history. In fact — you may teach them something about your complex medical condition or chronic illness! As you go through your post-secondary education, make sure you collect paperwork and communication correspondences. You never know when you may need them.
5. Have an emergency preparedness plan for your chronic illness
Make an emergency plan to manage chronic illness deterioration or chronic medical condition. What are signs and indicators that things are going well or not going well? Who will you reach out to in case of an emergency? Establish a plan with people in your close social network, so there is a procedure in place in the event of an emergency.
5 ways colleges can support students with chronic illnesses
Universities and colleges can also support students manage their chronic illnesses and chronic health conditions. Here are five ways institutions can recognize and address their needs:
1. Incorporate Universal Design for Learning (UDL) principles into course design and delivery.
Incorporate Universal Design for Learning (UDL) principles into course design and delivery. This may include using various teaching resources and methods for evaluation and online and in-person delivery options.
In addition to improving student learning outcomes, this way of structuring education can be described as “a value principle, like diversity or equality.” Using inclusive design reduces the need for student-specific accommodations.
2. Ensure students have access to accommodation resources
Ensure students have access to and know how to use a variety of resources. Include a tour of these services as part of orientation week. Alternatively (or in addition), have professors include accommodation resources as part of their course outlines. This normalizes asking for help from these services; it makes it easy.
3. Creative a healthy work environment
Encourage workplace health at an institutional level, not just for students. People are more likely to support others when they are supported themselves.
4. Facilitate coordinated support services
Facilitate coordinated services. This can include integrating physical and mental health services and access to social work, occupational therapy, and physical therapy within campus spaces — making it physically and emotionally accessible to students. Coordinating with family and community-based services helps to ensure there are different ways to meet students’ needs.
5. Design with Disability Inclusion in mind
Design with inclusion in mind. This includes everything from physical spaces to campus culture. Basic inclusive elements — such as ensuring washrooms have sharps containers, making quiet rest spaces available, providing lecturers with functioning microphones, incorporating breaks into long classes, having available spaces for eating and drinking, and keeping spaces scent-free — can go a long way towards supporting those with complex conditions in post-secondary education.
Pursuing college can be demanding for anyone, and may have extra challenges for those with chronic illness and complex health needs. Those students can help themselves by self-advocating, setting boundaries and being prepared, but institutions also have an integral role to play in creating supportive environments. Changes toward disability inclusion benefit everyone.
Authors: Jasmine Mah; MD (Internal Medicine Resident) & Ph.D. candidate (Focus on Geriatrics), Dalhousie University; and Kaitlin Sibbald, Ph.D. in Health Candidate, Dalhousie University